Tag Archives: ehlers-danlos syndrome

Invisible Illness: Searching for a Cure

Invisible Illness Week

Total Eye Care will be conducting clinical trials for patients with dysautonomia, chronic fatigue, fibromyalgia, and multiple sclerosis. As a part of the study, participants will receive an eye exam at no charge. Currently, we still have some openings for patients with relapsing remitting MS. If you would like to be a part of the study please contact us at [email protected].

Total Eye Care to Conduct Fundus Vascular Abnormalities Study

We are very pleased to announce that Total Eye Care will start its first clinical study next month. The title of the study is Vascular Fundus Changes in Patients With High Probability of Chronic Cerebrospinal Venous Insufficiency. Check out the video below for more information. We are recruiting patients with either Ehlers-Danlos Syndrome or Multiple Sclerosis so please spread the word. The video has a lot of good information on the study so please do check it out.

New Keratoconus Treatment Options for Patients

Due to the fact that one of the specialties at Total Eye Care is keratoconus we see many patients with this condition.  We recently updated our patient information on keratoconus page to reflect some of the new technologies available to our patients such as;

  • Mini scleral lenses, which provide excellent vision like that of traditionally fit gas permeable lenses, however with markedly improved comfort.
  • Corneal collagen cross linking, though not yet FDA approved, is a new technology that I expect will be of a tremendous benefit to our patients.

Ocular Manifestations of Ehlers-Danlos Syndrome

It’s hard to find a comprehensive source for the ocular problems experienced by patients with Ehlers-Danlos Syndrome.

Our practice continues to be sought out by patients for help in their quest for answers to the potential ocular complications related to Ehlers-Danlos Syndrome, such as dry eye syndrome and keratoconus, as a result, the number of patients we see with EDS grows rapidly.

Pediatrician’s Guide to Ehlers-Danlos

I have not done and article on Ehlers-Danlos in a while.  We have updated the ocular symptoms of EDS resources and made them available with color photos on Amazon.com. The Eye Doctor’s Guide to Ehlers-Danlos also includes a link to a resource sheet to give to your doctors.